Presenting Our New Brochure!
With a fresh look and program updates, we proudly unveil our new brochure, with a special end of year message from PRF’s Executive Director.
|October 25, 2010
October 25, 2010: PRF Celebrates the 1-Year Anniversary of the Find the Other 150 Campaign!
PRF's global campaign to find all children with Progeria has been a phenomenal success in its first year, resulting in a 31% increase in the number of children identified. Now more children than ever can get the support they need.
|September 10, 2010
Barbara Walters Reports on Progeria
Awareness of Progeria continues with the airing of a 20/20 special featuring Lindsay, Kaylee and Hayley, three girls with Progeria
PRF’s Mid-Year Report is IN!
Enjoy this 6-page account of our impressive accomplishments and goals.
|September 07, 2010
New Study Links Progeria to Aging in the General Population
Today, The Wall Street Journal reports on a landmark study, led by PRF’s Medical Director, that demonstrates the Progeria-causing protein Progerin increases in everyone as we age, suggesting a possible new risk factor for heart disease.
|August 18, 2010
CDC's 2010 National Conference to feature poster presentation on the success of "Find the Other 150 Campaign."
|July 01, 2010
ONEpossible ™ Campaign Raises $182,000!
Exceeding our goal by over $30,000, hundreds prove they are each ONE who makes a cure POSSIBLE.
|March 08, 2010
The Dr. Oz Show aired a very special segment on Progeria!
Click Here to read about the show featuring Dr. Leslie Gordon, PRF's Medical Director and Kaylee Halko, and Here to support Kaylee and the research.
|February 28, 2010
Rare Diseases Celebrated Around the World
There are nearly 8000 rare diseases in the world today affecting millions. Please join in raising awareness: Alone we are Rare. Together we are Strong.
Rare Disease Day US
|February 20, 2010
PRF's Leadership to air on Spike TV this weekend!
Progeria and PRF's work will be shown on Saturday, February 20th and Sunday the 21st , at 12:30 pm EST on Spike TV during the "PowerBlock" show MuscleCar