Because most medical care takers have never treated a child with Progeria, there are often questions about how to optimize quality of life and longevity of life through daily care and medical treatment. To answer that need, we have developed the Progeria Research Foundation Medical and Research Database in which we have compiled the health care records of children with Progeria and developed a centralized health database for use by health care professionals, medical researchers, and families of children with Progeria.

Included here are medical recommendations that PRF has compiled to date. We will continue to update these as more information comes in. If you have specific medical questions, please contact us at (978) 535-2594 or info@progeriaresearch.org.

Thank you to every child and family who participates in this very important project, and to the medical care takers writing and sharing these recommendations.

Physical Therapy and Occupational Therapy in Progeria. Authored by Leslie Gordon, M.D., PhD and Lisa MacDonnell, R.P.T. This publication discusses the benefits of physical and occupational therapy to help children with Progeria maintain maximum range of motion and optimal daily functioning [155kb].

Nutritional Supplements in Hutchinson-Gilford Progeria Syndrome, authored by Ingrid Harten MS, RD; Christine Hardy, MS, RD, and Leslie Gordon, MD, PhD. This publication discusses nutritional strategies to help children who have trouble eating and maintaining weight.[135kb PDF]

Information About Low-Dose Aspirin Treatment and Progeria; authored by Lloyd R. Feit, MD; Leslie Smoot, MD; and Leslie Gordon, MD, PhD. This publication discusses the potential role of.shtmlirin in proactively treating heart disease in Progeria. [232kb PDF]

 Frequently Asked Questions about Progeria