In Memory Of

In Memory Of

 

 
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The children who passed away since 1999:

1999
Clinton, 6 years old, from the United States
Jesus, 19 years old, from Mexico

2000
Lukasz, 8 years old, from Poland
Mariluz, 12 years old, from Chile
Rachel, 9 years old, from United States
Svenja, 12 years old, from Germany
Andrew, 8 years old, from United States
Jonathon, 11 years old, from United States
Ngoc, 15 years old, from Vietnam

2001
Joscha, 13 years old, from Germany
Stanislaw, 11 years old, from Poland
Juan, 16 years old, from Republic Argentina
Sabrina, 13 years old, from Switzerland
Mihailo, 13 years old, from Yugoslavia
Loana, 14 years old, from Romania 

2002
Glendis, 13 years old, from Venezuela

2003
Fleur, 2 years old, from England
Christopher, 12 years old, from United States
Nigel, 10 years old, from The Netherlands
Susana, 22 years old, from Mexico
Christopher, 20 years old, from Australia

2004
John, 16 years old, from the United States

2005
Kieran, 8 years old, from England
Claire, 14 years old, from Scotland
Saim, 14 years old, from Turkey
Ronny, from Venezuela, 3 days before his 17th birthday
Stuart, from Australia, 18 years old
Sacha, 9 years old, from France

2006
Zach, 3 ½ years old, from the United States
Kristian, 3 ½ years old, from the United States
Mirko, age 22, from Argentina
Juan Carlos, age 11, from Columbia
Michaela, 11 years old, from England
Wiradianty, “Ranti”, 11 years old, from Indonesia
Zoe, 13 years old, from Puerto Rico
Ory, 10 years old, from the United States

2007
Seth, 13 ½ years old, from the United States
Burcu, 20 years old, from Turkey
Maria, 9 years old, from Mexico

2008
Sarah, 14 years old, from Austria
Megane, 15 years old, from France
Maria, 10 years old, from Columbia

2009
Ashley, 17 years old, from Canada

2010
John, 18 years old, from the United States
Luci, 12 years old, from Mexico
Theo, 9 months old, from Sweden
Magnus, 3 years old, from Sweden 

2011
Vasile, 12 years old, from Romania
Leon, from South Africa, the day after his 26th birthday
Priya, 20 years old, from India
Christian, 13 years old, from Germany 

2012
Bianca, 7 years old, from Brazil
Pedro, 11 years old, from Brazil
Eric, 18 years old, from Canada
Milagros, 11 years old, from Argentina
Azeddine, 20 years old, from Morocco
Valentina, 1 year old, from Argentina 

Watch this video of Ashley who, in just 90 seconds, shines with her bright personality and insightful advice to other children with Progeria – Ashley will live on in our hearts.

Click here to read Remembering Amy, a heartfelt story told by Amy’s mother, best friend and favorite teacher, of the wonderful life of a child with Progeria and the profound effect she had on everyone she met.

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