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If you have been one of the lucky people who know or have met a child with Progeria, you know how incredibly special they are. Although Progeria causes them to endure many aging-related conditions such as heart disease, strokes, arthritis and osteoporosis, remarkably their intellect is unaffected. And despite startlingly physical changes in their young bodies, these extraordinary children are recognized for their intelligence, wit and gentle nature.
As of February 2013, here is where the 100 known children*, in 37 countries, with Progeria live:
*This figure includes 90 children with the classic Hutchinson-Gilford Progeria, who have a progerin producing mutation in the LMNA gene, and 10 Children in the Progeroid Laminopathy category who have a mutation in the Lamin pathway but do not produce progerin.
Adalia, age 3, is from the USA. Her favorite color is Pink, favorite activity is swimming, and favorite food is candy of course! Adalia also loves being a Mommy to her dolls and pushing them in the stroller. Learn more about her on Facebook
Learn all about this beautiful little boy, who was diagnosed in March 2007 at 5 months of age. His family and friends have created PRF’s Southwest Michigan chapter, with lots of exciting events to raise awareness and funds for Progeria research.
Hello world! My name is Carly
This site shows life through the eyes of a child. Diagnosed in April 2011 at 10 months of age, Carly became the 80th known child living with Progeria in the world. Carly-Q, as she is affectionately called by her parents and brothers Garrett and Grant, is an adorable, unstoppable bundle of energy! It did not take long for Carly to win the hearts and generosity of family and friends. Carly's supporters form Team Carly-Q, a group committed to raising awareness and funds to find the cure for Progeria as fast as possible!
Meet Hayley from England, one of the very special children with Progeria who has captured the hearts of many. Hayley has won the prestigious Children of Courage Award and appeared in several documentaries and other media stories about Progeria. She is also featured on a CD, Voices of Tomorrow, now on sale through our store.
Enjoy this beautiful video and biography of Josiah "Bubby" (nick-named because his little sister couldn't pronounce "brother"!) – he is quite a character!
Sweet Kaylee is now on Facebook!
Have fun reading Kaylee's journal, sign her guestbook and learn all about this wonderful little girl whose family and friends are all pitching in to support Progeria research. " Kaylee is such a happy little girl its hard to feel anything but thankful God gave us such a beautiful and happy child" write her parents.
This site was created in memory of Kristian, who passed away in March 2006. His parents have written an informative, loving chronicle of his too-short life of 3 ½ years, and have filled the site with beautiful pictures of this wonderful little boy.
Lindsay, who turned 2 in February 2006, was diagnosed with Progeria when she was 5 months old, but it doesn't stop her! She's a bundle of energy and all smiles. Visit her web site to see lots of fun pictures and learn more about Lindsay's loving parents and supportive family: "We love her with all our hearts and pray without ceasing that a cure is found".
Meet Michiel and Amber from Belgium on this multi-lingual site made with love by their parents. See lots of beautiful photos of these siblings with their friends, and learn about the parents' experiences living with Progeria, and the life of this wonderful boy and girl who brings so much joy to all who know them.
Nathan, 6 years old, and Bennett, 3 years old, are brothers with Progeria from the United States. Nathan likes to wrestle with Bennett and loves his Saturday morning sports class. He will be starting kindergarten in the fall. Bennett likes to play with his kitchen play set, piano, and bowling set. SpongeBob SquarePants, Mickey Mouse and grilled cheese are just a few of the boys' favorite things! Each brother has his own unique personality. Mom says, "Nathan is a great little guy. He is very easygoing and fun." While brother Bennett is "a very energetic little boy with lots of attitude!" For more on this adorable pair, visit www.nathanandbennett.org
Lovingly designed and written by Ory's mom, this site has lots of information on this adorable boy, who passed away in December 2006 at the age of 10. Get to know Ory through the many pictures and video and audio clips – he was truly special!
Zach Pickard was diagnosed with Progeria in December 2007 at the age of 11 months. His family and their friends took immediate action, holding fundraisers, speaking with the media and organizing a Kentucky chapter, to help find a cure for Zach and the other children with Progeria. Zach’s contagious energy and smile are what motivates this group – read all about Zach and his supporters.
Meet beautiful little Zoey, who is only 6 months old. Please join Zoey's family as they support PRF in their quest to find the cure for Progeria. Check out the Team Zoey website to read about all of the exciting local fundraisers that are planned to raise money for Progeria research.