- About Progeria
- About PRF
- Meet the Kids
- Medical Research
- Parents & Doctors
- Get Involved
- Fundraising Events
- Contact Us
- Donate Now
Progeria is one of the rarest diseases on earth, so raising awareness of it and PRF’s work is vital to our efforts to find all children affected by it, and to gather as many supporters as possible. As word of Progeria and our tremendous progress spreads worldwide, the public’s fascination with these special children continues to grow, with widespread coverage of Progeria children and the research that will lead to a cure. Click here for highlights from just a few of the many media outlets with a keen interest in Progeria and PRF’s work.
Bruins Stanley Cup Ring Raffle to Benefit PRF
Through December 23, 2011: Buy your tickets to win an official Boston Bruins Stanley Cup Championship ring and half the proceeds go to PRF!
August 09, 2011
PRF and Boston Bruins Team Up to “Find the Other 150”!
In an exciting expansion of PRF's global campaign to find all children with Progeria, players have recorded public service announcements to air in Europe and Canada.
June 29, 2011
PRF-funded study Identifies Rapamycin as Possible Treatment for Progeria
Another sign of the spectacular pace of Progeria research, that may also provide clues to the aging process that affects us all.
June 13, 2011
Groundbreaking Study on Progeria-Aging Link
The captivating connection between Progeria and aging continues to strengthen, as NIH researchers find link between telomeres and progerin.
PRF’s 2010 Annual Report is In!
Read all about PRF’s many activities, tremendous progress and impressive financials from last year in this 14-page report.
June 20, 2011
3rd Annual ONEpossible ™ Campaign Reaches Goal!
Thanks to over 800 supporters, our annual campaign once again succeeded, raising $175,000 to help fund PRF’s work. Thank you for being e ONE who makes a cure POSSIBLE!
February 28, 2011
PRF Celebrates World Rare Disease Day
Join PRF in its support for this global event, which recognizes the over 7,000 rare diseases affecting more than 250 million people worldwide.
Presenting Our New Brochure!
With a fresh look and program updates, we proudly unveil our new brochure, with a special end of year message from PRF’s Executive Director.