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Worldwide Coverage Promotes Public Awareness and Scientific Progress
Since the 2003 gene discovery, PRF’s story has appeared on CNN, Primetime Live, The Today Show, in Time Magazine, People magazine, The New York Times, and dozens of other media outlets that have a keen interest in Progeria and PRF’s work. This has led to more children being diagnosed earlier, so they get proper medical care and enter our programs, and more scientists becoming involved. This is how the research field of Progeria mushrooms, as we see more children identified and more high-level scientists producing data that will help to better understand Progeria and develop treatments in the future. Read below for excerpts from these major media stories, and about the latest scientific breakthroughs, and click here for highlights from just a few of the many media outlets with a keen interest in Progeria and PRF’s work.
April 24, 2013
PRF’s 2013 Scientific Workshop
April 24 – 26, 2013 in Bethesda, MD: “Hand in Hand: Basic & Clinical Science Working Together Toward the Cure” was held in Bethesda, MD. A record number of clinicians and researchers gathered from all over the world to share the latest data, and set the stage for future efforts to get us to treatments and the cure.
HBO Documentary Premiering at Film Festivals, Fall Broadcast Planned
Featuring PRF founders and their son Sam, HBO’s documentary "Life According to Sam" premiered at the world-renowned Sundance Film Festival in January, receiving rave reviews and raising awareness of Progeria and PRF’s work in a whole new way. More festival showings are taking place throughout the year, culminating in the HBO broadcast this fall.
Special Edition Newsletter!
Enjoy this 8-page piece that provides more details on the clinical trial and is dedicated to all the courageous children and their families who helped make it possible.
The Next Phase…
We’ve come so far in such a short period of time. But FTIs are a treatment, not a cure. PRF is using the knowledge gained from this trial to push research forward, testing other drugs in larger, more costly clinical trials. With our proven, fast-paced record of success and your support, Together, We WILL Find The Cure. DONATE NOW to help children with Progeria lead longer, healthier lives.
A Special Thank You…
The wonderful news of an effective treatment is being heard around the world, as families, researchers, and PRF supporters celebrate this historic milestone. We pay tribute to the many wonderful people and organizations that helped make this day possible.
The World Learns of Progeria Treatment
News of the first-ever treatment for Progeria is spreading around the globe, with dozens of media outlets reporting on this remarkable advancement. Click here to get to links on dozens of articles, radio clips and TV airings!
Click here to read our special newsletter on the findings.
September 24, 2012
WE DID IT! First-ever Treatment for Progeria Discovered!!
History has been made, with every child in the first-ever Progeria clinical drug trial showing improvement in one or more areas of their condition, proving that the FTI drug lonafarnib is the first known, effective treatment for children with Progeria.
ONEpossible ™ Campaign Reaches its Goal!
With the help of over 1,000 people, we raised $200,000 by June 30th for Progeria research. Thank you for being ONE who makes a cure POSSIBLE!!
Progeria Takes Center Stage at Prestigious TEDMED Meeting
15-year-old Sam Berns captivates the crowd with his views on what it's like to live with Progeria and participate in clinical drug trials.
PRF’s Annual Report for 2011 is here!
From obscurity in 1999 to global prominence today, we are proud to detail another exciting year of advancements for Progeria and PRF.
Number of Children Identified Continues to Soar
Thanks to PRF's "Find the Other 150" initiative, the global campaign to find all children with Progeria has helped attain an astonishing 85% increase in those identified. Now more children than ever can get the support they need.