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Since the 2003 gene discovery, PRF’s story has appeared on CNN, Primetime Live, The Today Show, in Time Magazine, People magazine, The New York Times, and dozens of other media outlets that have a keen interest in Progeria and PRF’s work. This has led to more children being diagnosed earlier, so they get proper medical care and enter our programs, and more scientists becoming involved. This is how the research field of Progeria mushrooms, as we see more children identified and more high-level scientists producing data that will help to better understand Progeria and develop treatments in the future. Read below for excerpts from these major media stories, and about the latest scientific breakthroughs, and  click here for highlights from just a few of the many media outlets with a keen interest in Progeria and PRF’s work.

What's New

September 2016

 Leadership Changes at PRF

A new chapter in PRF leadership begins as Meryl N. Fink, Esq becomes the Executive Director.  Audrey Gordon who has served as PRF’s founding Executive Director will transition to Director of Development.

September 2016
Our 2016 Newsletter and Annual Report is here!
Read all about PRF’s research updates, events, financials, and MORE! Happy reading and THANK YOU for your support.

July 11, 2016
Results of Triple Drug Trial for Progeria Published
The journal Circulation published the Progeria triple drug trial results, wherein two additional drugs, pravastatin and zoledronic acid, were added to the already successful drug lonafarnib. PRF continues to identify promising drug candidates that may offer children with Progeria longer, healthier lives – like our new two-drug trial.

April 2016
New, 2-Drug Clinical Trial Begins!
Our mission to cure Progeria continues: the drug everolimus is being added to the current lonafarnib treatment regimen, with the hope that the two drugs together will be even more effective than lonafarnib alone. Click here for exciting details.

February 18, 2016
TEDx talks hit 1 billion views; Sam Berns’ talk featured in global TED announcement
He has taught millions how to live a happy life. And now, with TEDx celebrating the milestone of one billion views total, they have chosen Sam’s as one of 15 “amazing talks” to highlight. Check out our special campaign and what you can do to help. #LiveLikeSam

Shop in Our Store
Don’t forget to check out the PRF store for last minute gifts. Choose from our wristbands, water bottles, baseball hats and more! (Please order by December 18 to guarantee Christmas delivery.)

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