Worldwide Coverage Promotes Public Awareness Education Outreach
Promotes Scientific Progress
Since the 2003 gene discovery, PRF’s story has appeared on CNN, Primetime Live, The Today Show, in Time Magazine, People magazine, The New York Times, and dozens of other media outlets that have a keen interest in Progeria and PRF’s work. This has led to more children being diagnosed earlier, so they get proper medical care and enter our programs, and more scientists becoming involved. This is how the research field of Progeria mushrooms, as we see more children identified and more high-level scientists producing data that will help to better understand Progeria and develop treatments in the future. Read below for excerpts from these major media stories, and about the latest scientific breakthroughs.
What's New
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April, 2008 First-Ever Progeria Clinical Drug Trial Nears 1-Year Mark! PRF continues to make history, as children prepare for their 1-year visit to Children’s Hospital Boston, marking a half-way point to completion. Click here for details on how you can help. |
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December, 2007 View our special 2007 holiday card – Happy Holidays! |
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March, 2008 Hot off the presses - our first 2008 newsletter! Click here to enjoy 16 pages of PRF news. |
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September 18, 2007 Old at Age 3 Book Published A compelling and courageous tribute to author Keith Moore’s son, Zachary, who died of Progeria at the young age of 3, is now available. 25% of the proceeds will be donated to PRF. |
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January 29, 2007 PRF on Front Page of Wall Street Journal! After months of interviews with leading Wall Street Journal health reporter Amy Dockser Marcus, PRF is featured in a front page article in a recent issue of the publication. Click here to access the Wall Street Journal article online. |
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March 01, 2007 PRF’s CA Chapter member Chip Foose featured on Front Page of USA Today Famous car designer and proud PRF supporter receives accolades from Jay Leno and other car enthusiasts. |
Fundraising Events
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May 17, 2008 in Lexington, Kentucky: Pancake Breakfast and Silent Auction | |
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May 30, 2008: Play Poker for Progeria in Peabody, MA! |