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PRF’s 2019 Newsletter

PRF’s 2019 Newsletter

Lonafarnib Managed Access Program Launched! Trial participation and travel to Boston no longer required for most children in order to access this treatment. We are thrilled to announce that the lonafarnib Managed Access Program (MAP) is now up and running. PRF and...
‘Find the Children’ campaign launches in India

‘Find the Children’ campaign launches in India

Due to the incredible success of previous years’ campaigns in 2009 and 2015, we are thrilled to announce the 2019 launch of our ‘Find the Children’ initiative to search globally for the undiagnosed children with Progeria so that they, too, can have access to the...
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