سباق مع سام

The January 30th issue of the مجلة نيويورك تايمز features the compelling story of PRF Medical Director Dr. Leslie Gordon, her husband Dr. Scott Berns, and their son Sam. The story, “Racing with Sam,” highlights the challenges faced by the Gordon and Berns family upon learning of Sam’s diagnosis of Progeria. The piece also chronicles PRF’s success of bringing the disease into the forefront of the news and the scientific community, leading up to the discovery of the Progeria gene.

“From her unique position as both mother and scientist, [Gordon] has assembled a powerful group of collaborators to push this rare disease to the front of the research agenda.”

“Everyone talks about how fast we’re going,” Gordon said … “but the truth is, we’re not going fast enough.”

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https://www.nytimes.com