أخبار
Our 2018 Newsletter is Here!
Read about our remarkable progress over the past year, the latest developments in our clinical trial, our wonderful Chapters and Volunteers and so much more.
On the Heels of the JAMA Study, PRF and Eiger BioPharmaceuticals Partner to Pursue FDA Approval of Lonafarnib
On the Heels of the JAMA Study, PRF and Eiger BioPharmaceuticals Partner to Pursue FDA Approval of Lonafarnib.
ليلة العجائب 2018: موسيقى لأذنيك!
PRF’s signature event, Night of Wonder Gala: Rock the Cure, was held on Saturday April 28, 2018 at the beautiful Renaissance Waterfront Hotel, Boston. Thanks to all of our supporters we raised a RECORD-BREAKING $580,000! Check out our event page for fabulous pictures from this special evening.
April 24, 2018: Global Study Published in JAMA Finds Treatment with Lonafarnib Extends Survival in Children with Progeria!
A new study published in The Journal of the American Medical Association (JAMA) brings new hope and optimism to the Progeria community. انقر هنا لمزيد من التفاصيل.
First Children Enroll to Complete Their Final Visit
Our current trial continues, with children regularly coming to Boston from all over the world to enroll. Click here for more details.
Amazon Smile
December 1, 2017
Support us when you shop this holiday season – and throughout the year! Start your shopping at Amazon Smile and Amazon donates to The Progeria Research Foundation with every eligible purchase.
نشرتنا الإخبارية لعام 2017 وصلت!
Check out our 2017 Newsletter HERE! Read about our new clinical trial, remarkable program milestones, wonderful Chapters and Volunteers, and so much more.
محاضرة سام بيرنز "فلسفتي من أجل حياة سعيدة" على موقع TED، يشاهدها أكثر من 25 مليون شخص
September 8, 2017
Sam Berns’ TEDx Talk Reaches 25 Million Views – Celebrate with Us!
Sam’s talk, “My Philosophy for a Happy Life”, has inspired over 25 Million people with its message of hope and love. Help us honor Sam’s legacy with a donation of $25 or more to PRF – the Foundation created by his family to treat and cure children with Progeria. CLICK HERE أو TEXT SAM25 to 41444 to celebrate this extraordinary young man – Sam’s parents will match up to $25,000!
نشكرك على مساعدتنا في الوصول إلى هدف حملتنا ONEpossible!
August 2, 2017 Thanks to YOU, we have raised enough to fund all of the trial expenses for several children that are enrolling this summer. Click هنا to see the final total!
بطولة CURE CUP Classic للغولف الافتتاحية
May 15, 2017 Thank you for making our Inaugural Tournament a Huge Success!