30. September 2019 | Nachricht
Lonafarnib Managed Access Program Launched! Trial participation and travel to Boston no longer required for most children in order to access this treatment. We are thrilled to announce that the lonafarnib Managed Access Program (MAP) is now up and running. PRF and...
19. September 2019 | Nachricht, Unkategorisiert
Due to the incredible success of previous years’ campaigns in 2009 and 2015, we are thrilled to announce the 2019 launch of our ‘Find the Children’ initiative to search globally for the undiagnosed children with Progeria so that they, too, can have access to the...
16. September 2019 | Veranstaltungen, Nachricht, Unkategorisiert
Thank you so much to all runners, walkers, donors, sponsors, volunteers, and anyone else who participated in making PRF’s 18th Annual International Race for Research such a success!!Please enjoy the photos from the race HERE.Runners, click HERE to see your race...
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