PRF’s Global Campaign to Find All Children with Progeria: IT’S WORKING!

PRF’s global effort to find all children with Progeria throughout the world has resulted in finding an astonishing 14 more since October 2009. Now more children than ever can get the support they need. 

Updated September 2010: Just 10 months after the launch of this campaign. we have found 14 more of the 150 believed to be unidentified. Please visit www.findtheother150.org (now find the children) and continue to spread the word!

With a frequency of 1 in 4-8 million, there are an estimated 200 children around the world who have Progeria. When our new “Find the Other 150” campaign began in October 2009, we only knew of 54 children. We are thrilled that in just ten months, we’ve seen an unprecedented jump from 54 to 68 children, – a 26% increase! – largely due to our global awareness campaign efforts. The most recent 13 live in Brazil, India, Japan, Peru, Portugal, South Africa, Turkey and the United States.

This global campaign seeks to find every child with Progeria worldwide, and help ensure they get the care and support they need. PRF has set up a special web site with Progeria fact sheets, photo galleries and a collection of podcasts in six languages to help put a face on Progeria.

Let’s keep the momentum going: please visit www.findtheother150.org (now find the children)to find out more.

Working diligently with you, our friends at Spectrum और ग्लोबलहेल्थपीआर to get the word out, we will find the other 150!