समाचार
हमने यह कर दिखाया - शीर्ष चैरिटी नेविगेटर रेटिंग का एक दशक!
लगातार दसवें वर्ष, पीआरएफ को देश के सबसे विश्वसनीय चैरिटी मूल्यांकनकर्ता द्वारा सर्वोच्च संभव रेटिंग प्राप्त हुई है।
पीआरएफ के नए पारिवारिक संपर्क मंच, प्रोजेरिया कनेक्ट का वैश्विक शुभारंभ!
प्रोजेरिया से प्रभावित सभी परिवारों को बुलावा! यह समय है आपस में जुड़ने का - एक दूसरे से और PRF से सीखने का, संसाधनों और अनुभवों को साझा करने का, और एक समुदाय के रूप में आगे बढ़ने का, चाहे आप दुनिया में कहीं भी रहते हों।
रोमांचक समाचार - सैम बर्न्स के TEDx टॉक को 100 मिलियन क्रॉस-प्लेटफॉर्म व्यू मिले!
We are thrilled to announce that Sam Berns’ TEDx talk, ‘My Philosophy for a Happy Life,’ has now been viewed across TED and TEDx platforms more than 100 million times!
PRF Newsletter 2023
PRF’s 2023 newsletter is here, rife with many exciting updates on PRF’s progress toward worldwide awareness and the CURE!
128th Boston Marathon Official Charity
PRF is proud to be a part of the Boston Athletic Association’s 128th Bank of America Boston Marathon® Official Charity Program. Our team of 10 runners will hit the streets on April 15, 2024!
पीआरएफ के सह-संस्थापक दुर्लभ रोग दवा विकास में विचार नेता के रूप में कार्य करते हैं
Hear PRF co-founder and Medical Director, Dr. Leslie Gordon, along with long-time colleague Dr. Francis Collins, share their journey in rare disease drug development for NORD educational series.
THANK YOU for making our 2023 ONEpossible Campaign a huge success!
ONEpossible 2023, PRF’s mid-year campaign, kicks off today! Learn how, thanks to YOUR support, PRF continues to make a dramatic impact – both on the length and quality of life for children and young adults with Progeria.
Team PRF runs the Boston Marathon again!
On Monday, April 17, 2023, The Progeria Research Foundation will cheer on two long-time PRF supporters who will take to the streets in the Boston Marathon on behalf of the Progeria community.
Exciting research milestones in treatment evaluation and life extension!
Our research team has discovered a vital new way to measure progerin, the toxic protein that causes Progeria. With this discovery, scientists also found that the long-term benefit of lonafarnib for children with Progeria is greater than we thought.
What do these two findings mean for the Progeria community?
PRF’s 11th International Scientific Workshop was a success!
Thank you to all of those who attended The Progeria Research Foundation’s 11th International Scientific Workshop – RACE Progeria to the Cure!