Notizia

For the 10th straight year, PRF has earned the highest possible rating by the nation’s most trusted charity evaluator.

Calling all families impacted by Progeria! It’s time to get connected – to learn from each other and from PRF, share resources and experiences, and thrive as a community, no matter where in the world you live.

We are thrilled to announce that Sam Berns’ TEDx talk, ‘My Philosophy for a Happy Life,’ has now been viewed across TED and TEDx platforms more than 100 million times!

Hear PRF co-founder and Medical Director, Dr. Leslie Gordon, along with long-time colleague Dr. Francis Collins, share their journey in rare disease drug development for NORD educational series.

Our research team has discovered a vital new way to measure progerin, the toxic protein that causes Progeria. With this discovery, scientists also found that the long-term benefit of lonafarnib for children with Progeria is greater than we thought.
What do these two findings mean for the Progeria community?