News
Long-time friend and PRF supporter Chip Foose supports PRF with truck auction!
Wow – a HUGE thank you to renowned automotive designer Chip Foose and our friends at RealTruck for a very generous donation to PRF!
Hot off the presses: PRF’s 2024 Newsletter!
PRF’s 2024 Newsletter is OUT – check it out for details on the launch of the NEW Progeria clinical trial, get exciting updates on the lives of those you’re supporting, and SO MUCH MORE.
PRF is a member of the 2025 Bank of America Boston Marathon Official Charity Program!
PRF is proud to be a part of the 129th Boston Marathon® presented by Bank of America. Our team of 10 runners will hit the streets on April 21, 2025!
Mourning the loss of PRF Ambassador, Sammy Basso
The Progeria Research Foundation honors the life of Progeria researcher and advocate, Sammy Basso. Sammy sadly passed away at the age of 28 on October 5, 2024.
BIG NEWS: Announcing the launch of a brand-new clinical drug trial!
We’re back at it! PRF is thrilled to announce the start of a new Progeria clinical trial with a new drug called Progerinin.
New York Times | July 24, 2024: A Cure for Progeria Could be on the Horizon
The research is heating up: As reported in the New York Times, the cure for Progeria could be on the horizon!! Our collaborations with top minds in gene editing are paying off, and in the words of former NIH Director, Dr. Francis Collins, may be “the answer to a dream we all want to come true.”
ONEpossible 2024
Thank you 🙏 to everyone who helped make our 2024 ONEpossible campaign a success.
💙Together, we WILL find the cure!
PRF now collaborating with Sentynl Therapeutics, new global owner of lonafarnib treatment (Zokinvy©)
Effective Friday, May 3, Sentynl Therapeutics is responsible for the manufacture and distribution of Zokinvy, the FDA-approved treatment for Progeria.
PRF’s 12th International Scientific Workshop
Join us at our scientific workshop taking place at the Boston Marriott Cambridge Hotel, from October 29-31, 2025, to hear about the latest breakthroughs in Progeria research.
We’re Hiring!
Join us in achieving our mission and exemplifying PRF’s core values, while making a difference in the lives of children and young adults living with Progeria around the world!
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