News
ONEpossible 2024
June 1, 2024: ONEpossible 2024, PRF’s mid-year campaign, kicks off today! Learn how, thanks to YOUR support, PRF is exploring 3 therapeutic pathways to treat and cure Progeria, attacking this disease at the Protein, RNA and DNA levels.
PRF now collaborating with Sentynl Therapeutics, new global owner of lonafarnib treatment (Zokinvy®)
Effective Friday, May 3, Sentynl Therapeutics is responsible for the manufacture and distribution of Zokinvy, the FDA-approved treatment for Progeria.
PRF’s 12th International Scientific Workshop
Join us at our scientific workshop taking place at the Boston Marriott Cambridge Hotel, from October 29-31, 2025, to hear about the latest breakthroughs in Progeria research.
We’re Hiring!
Join us in achieving our mission and exemplifying PRF’s core values, while making a difference in the lives of children and young adults living with Progeria around the world!
We did it – A decade of top Charity Navigator Ratings!
For the 10th straight year, PRF has earned the highest possible rating by the nation’s most trusted charity evaluator.
Global launch of PRF’s brand-new family engagement platform, Progeria Connect!
Calling all families impacted by Progeria! It’s time to get connected – to learn from each other and from PRF, share resources and experiences, and thrive as a community, no matter where in the world you live.
EXCITING NEWS – Sam Berns’ TEDx Talk Hits 100 Million Cross-Platform Views!
We are thrilled to announce that Sam Berns’ TEDx talk, ‘My Philosophy for a Happy Life,’ has now been viewed across TED and TEDx platforms more than 100 million times!
PRF Newsletter 2023
PRF’s 2023 newsletter is here, rife with many exciting updates on PRF’s progress toward worldwide awareness and the CURE!
128th Boston Marathon Official Charity
PRF is proud to be a part of the Boston Athletic Association’s 128th Bank of America Boston Marathon® Official Charity Program. Our team of 10 runners will hit the streets on April 15, 2024!
PRF co-founder serves as thought leader in rare disease drug development
Hear PRF co-founder and Medical Director, Dr. Leslie Gordon, along with long-time colleague Dr. Francis Collins, share their journey in rare disease drug development for NORD educational series.
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