News
Our 2018 Newsletter is Here!
Read about our remarkable progress over the past year, the latest developments in our clinical trial, our wonderful Chapters and Volunteers and so much more.
On the Heels of the JAMA Study, PRF and Eiger BioPharmaceuticals Partner to Pursue FDA Approval of Lonafarnib
On the Heels of the JAMA Study, PRF and Eiger BioPharmaceuticals Partner to Pursue FDA Approval of Lonafarnib.
Night of Wonder 2018: Music to your ears!
PRF’s signature event, Night of Wonder Gala: Rock the Cure, was held on Saturday April 28, 2018 at the beautiful Renaissance Waterfront Hotel, Boston. Thanks to all of our supporters we raised a RECORD-BREAKING $580,000! Check out our event page for fabulous pictures from this special evening.
April 24, 2018: Global Study Published in JAMA Finds Treatment with Lonafarnib Extends Survival in Children with Progeria!
A new study published in The Journal of the American Medical Association (JAMA) brings new hope and optimism to the Progeria community. Click here for more details.
First Children Enroll to Complete Their Final Visit
Our current trial continues, with children regularly coming to Boston from all over the world to enroll. Click here for more details.
Amazon Smile
December 1, 2017
Support us when you shop this holiday season – and throughout the year! Start your shopping at Amazon Smile and Amazon donates to The Progeria Research Foundation with every eligible purchase.
Our 2017 Newsletter is Here!
Sam Berns Ted Talk “My Philosophy for a Happy Life” over 25 Million
September 8, 2017
Sam Berns’ TEDx Talk Reaches 25 Million Views – Celebrate with Us!
Sam’s talk, “My Philosophy for a Happy Life”, has inspired over 25 Million people with its message of hope and love. Help us honor Sam’s legacy with a donation of $25 or more to PRF – the Foundation created by his family to treat and cure children with Progeria. CLICK HERE or TEXT SAM25 to 41444 to celebrate this extraordinary young man – Sam’s parents will match up to $25,000!
THANK YOU for helping us reach our ONEpossible Campaign Goal!
Inaugural CURE CUP Classic Golf Tournament
May 15, 2017 Thank you for making our Inaugural Tournament a Huge Success!
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