Nieuws
We hebben het gedaan – Een decennium van top Charity Navigator-beoordelingen!
Voor het 10e jaar op rij heeft PRF de hoogst mogelijke beoordeling gekregen van de meest betrouwbare liefdadigheidsbeoordelaar van het land.
Wereldwijde lancering van PRF's gloednieuwe platform voor familiebetrokkenheid, Progeria Connect!
Oproep aan alle families die getroffen zijn door Progeria! Het is tijd om verbinding te maken – om van elkaar en van PRF te leren, bronnen en ervaringen te delen en te floreren als een gemeenschap, ongeacht waar ter wereld je woont.
SPANNEND NIEUWS – Sam Berns' TEDx Talk bereikt 100 miljoen cross-platform views!
We are thrilled to announce that Sam Berns’ TEDx talk, ‘My Philosophy for a Happy Life,’ has now been viewed across TED and TEDx platforms more than 100 million times!
PRF Nieuwsbrief 2023
PRF’s 2023 newsletter is here, rife with many exciting updates on PRF’s progress toward worldwide awareness and the CURE!
128th Boston Marathon Official Charity
PRF is proud to be a part of the Boston Athletic Association’s 128th Bank of America Boston Marathon® Official Charity Program. Our team of 10 runners will hit the streets on April 15, 2024!
PRF co-founder serves as thought leader in rare disease drug development
Hear PRF co-founder and Medical Director, Dr. Leslie Gordon, along with long-time colleague Dr. Francis Collins, share their journey in rare disease drug development for NORD educational series.
THANK YOU for making our 2023 ONEpossible Campaign a huge success!
ONEpossible 2023, PRF’s mid-year campaign, kicks off today! Learn how, thanks to YOUR support, PRF continues to make a dramatic impact – both on the length and quality of life for children and young adults with Progeria.
Team PRF loopt opnieuw de Boston Marathon!
On Monday, April 17, 2023, The Progeria Research Foundation will cheer on two long-time PRF supporters who will take to the streets in the Boston Marathon on behalf of the Progeria community.
Spannende onderzoeksmijlpalen in de evaluatie van behandelingen en levensverlenging!
Our research team has discovered a vital new way to measure progerin, the toxic protein that causes Progeria. With this discovery, scientists also found that the long-term benefit of lonafarnib for children with Progeria is greater than we thought.
What do these two findings mean for the Progeria community?
PRF’s 11th International Scientific Workshop was a success!
Thank you to all of those who attended The Progeria Research Foundation’s 11th International Scientific Workshop – RACE Progeria to the Cure!
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