Nieuws
Onze nieuwsbrief van 2018 is er!
Read about our remarkable progress over the past year, the latest developments in our clinical trial, our wonderful Chapters and Volunteers and so much more.
Naar aanleiding van de JAMA-studie werken PRF en Eiger BioPharmaceuticals samen om FDA-goedkeuring van Lonafarnib na te streven
On the Heels of the JAMA Study, PRF and Eiger BioPharmaceuticals Partner to Pursue FDA Approval of Lonafarnib.
Night of Wonder 2018: Music to your ears!
PRF’s signature event, Night of Wonder Gala: Rock the Cure, was held on Saturday April 28, 2018 at the beautiful Renaissance Waterfront Hotel, Boston. Thanks to all of our supporters we raised a RECORD-BREAKING $580,000! Check out our event page for fabulous pictures from this special evening.
April 24, 2018: Global Study Published in JAMA Finds Treatment with Lonafarnib Extends Survival in Children with Progeria!
First Children Enroll to Complete Their Final Visit
Our current trial continues, with children regularly coming to Boston from all over the world to enroll. Click here for more details.
Amazone glimlach
December 1, 2017
Support us when you shop this holiday season – and throughout the year! Start your shopping at Amazon Smile and Amazon donates to The Progeria Research Foundation with every eligible purchase.
Onze nieuwsbrief van 2017 is er!
Sam Berns Ted Talk “Mijn filosofie voor een gelukkig leven” meer dan 25 miljoen keer bekeken
September 8, 2017
Sam Berns’ TEDx Talk Reaches 25 Million Views – Celebrate with Us!
Sam’s talk, “My Philosophy for a Happy Life”, has inspired over 25 Million people with its message of hope and love. Help us honor Sam’s legacy with a donation of $25 or more to PRF – the Foundation created by his family to treat and cure children with Progeria. CLICK HERE of TEXT SAM25 to 41444 to celebrate this extraordinary young man – Sam’s parents will match up to $25,000!
THANK YOU for helping us reach our ONEpossible Campaign Goal!
Inaugural CURE CUP Classic Golf Tournament
May 15, 2017 Thank you for making our Inaugural Tournament a Huge Success!