消息
我们做到了——十年顶级慈善导航评级!
PRF 连续十年获得美国最值得信赖的慈善评估机构的最高评级。
PRF 全新家庭参与平台 Progeria Connect 全球发布!
呼吁所有受早衰症影响的家庭!现在是时候建立联系了——无论你住在世界的哪个角落,都可以互相学习,向 PRF 学习,分享资源和经验,并作为一个社区蓬勃发展。
令人兴奋的消息——Sam Berns 的 TEDx 演讲跨平台观看次数突破 1 亿!
We are thrilled to announce that Sam Berns’ TEDx talk, ‘My Philosophy for a Happy Life,’ has now been viewed across TED and TEDx platforms more than 100 million times!
PRF 简讯 2023
PRF’s 2023 newsletter is here, rife with many exciting updates on PRF’s progress toward worldwide awareness and the CURE!
128th Boston Marathon Official Charity
PRF is proud to be a part of the Boston Athletic Association’s 128th Bank of America Boston Marathon® Official Charity Program. Our team of 10 runners will hit the streets on April 15, 2024!
PRF co-founder serves as thought leader in rare disease drug development
Hear PRF co-founder and Medical Director, Dr. Leslie Gordon, along with long-time colleague Dr. Francis Collins, share their journey in rare disease drug development for NORD educational series.
感谢您让我们的 2023 年 ONEpossible 活动取得巨大成功!
ONEpossible 2023, PRF’s mid-year campaign, kicks off today! Learn how, thanks to YOUR support, PRF continues to make a dramatic impact – both on the length and quality of life for children and young adults with Progeria.
Team PRF runs the Boston Marathon again!
On Monday, April 17, 2023, The Progeria Research Foundation will cheer on two long-time PRF supporters who will take to the streets in the Boston Marathon on behalf of the Progeria community.
Exciting research milestones in treatment evaluation and life extension!
Our research team has discovered a vital new way to measure progerin, the toxic protein that causes Progeria. With this discovery, scientists also found that the long-term benefit of lonafarnib for children with Progeria is greater than we thought.
What do these two findings mean for the Progeria community?
PRF’s 11th International Scientific Workshop was a success!
Thank you to all of those who attended The Progeria Research Foundation’s 11th International Scientific Workshop – RACE Progeria to the Cure!